In the Nighttime Mind of a Parent to a Child With Epilepsy as seen on The Mighty
I’m doing everything I shouldn’t be doing and nothing I really want to do. I am a master of mindlessness and avoidance, and it’s all I can really muster at the moment. I have decided numbing myself with social media, news and politics is preferable to cleaning my house, researching epilepsy or contemplating my son’s recent diagnosis.
It’s been 10 days since we found out our son has epilepsy. I am relieved to have a diagnosis after two solid years of testing and re-testing and wondering. I am grateful we have access to medicine for these seizures, and I am even more grateful he seems to be adjusting well to the meds. I am.
But when night falls and life quiets down, I begin to think about things a bit more. And by think, I mean worry. Nighttimes are the most challenging for me. In these quiet and calm moments, I am overcome by the urge to pull him into bed with us for the rest of eternity (or until he thinks that’s just weird); but then I remember I can’t actually fall asleep in the same bed as him and this sleep-deprived mom is a bad mom. Read the rest on The Mighty